Why can’t I fall asleep at night? Why does my body want to shiver and shake? My legs and arms won’t relax without benadryl and melatonin and pain meds. Something isn’t right. Getting up three or four times to wear down my limbs so that they’ll pass out like my mind and the rest of my body craves for them to do. I’m crazy during the day, can’t put words together like I should sometimes. I’m fidgety, can’t sit still in meetings. I’m making poor decisions. My driving skills have waned a tiny bit but not enough to stop driving. Something needs to change. I go see the doctor and he says – I’d bet your anemic. I hadn’t thought of that – figured I was just genetically predisposed to a horrifying life with restless leg syndrome like my father has. Has me start taking iron supplements and within a few days, the restless legs and arms are better but not resolved. So he sends me in for a sleep study. I have been diagnosed with periodic limb movement disorder. It sucks. But since I’m low on iron, doc won’t give me sleep meds until my iron is up because we won’t know what scale we’re dealing with until then.
So I start taking iron and I get my period, it’s a vicious one and it wipes me out. My body can’t handle the blood loss. I’m weak and tired and suddenly What the hell is this sharp pain in my hip? Ugh. Why am I suddenly getting cramps? I haven’t had cramps in years. Huh there’s a little lump there where this hurts. That’s odd, this lump is pretty big, how have I not felt this before… Weird… Two days later, lump still there, but it doesn’t hurt any more – no pain, move on with my life. Four months in a row this happened. Each month it hurt a little more. Eventually, it didn’t stop hurting and I couldn’t walk up the stairs without crawling in as close to a fetal position as I could muster.
In August 2016, it never stopped hurting and it put me on the floor a few times. On Sunday, September 4th, it hurt so badly my fiance put me to bed and had me take some powerful drugs. I went to bed at 7:30pm hoping to not feel the pain any longer. I woke up in a flurry of pain several times through the night. I called the doc in the morning. On Tuesday, I had an appointment with the doc. On Wednesday, I had an ultrasound. On Thursday, I had surgery scheduled.
It was diagnosed as and confirmed to be endometriosis. Caused by the c-sections I’d had for both my kids more than 10 years ago. A few cells escaped and embedded themselves in my abdominal wall way over near my left hip. I asked the doc to do a hysterectomy while she was in there. I am done having kids and the bleeding plus my anemia is making me ill each month. She agreed and so did my insurance company. So in I went, they sliced me wide open and removed the endometriosis lump, my uterus, tubes, and cervix – leaving my ovaries behind. Then they saw another endo lump on my right hip and took that one out too. Doc says less than 2% of endometriosis cases are caused by c-sections. I felt lucky.
A month later I went into full menopause. WTF? I still had my ovaries, they are supposed to allow me to go through natural menopause. Again, WTF? So I visit the doc and get put on Estrogen. Yay. The estrogen does a great job of helping with the mood swings and night sweats but it also helped a fibroid grow rapidly in my right boob. It was in the exact same spot as one I’d had removed in 1995. Went to see my boob lump doc and she said – yep, the estrogen will make these pop up wherever they are.
So then I had to have another surgery to have the lump removed. Fun times. It’s been a couple of months and I’m doing better now. But I’m gaining weight. I need to do something about that. Oh and my blood pressure is increasing so I’m going to go see my doc today. And I still have PLMD.